About Parkinson's Disease




Newly Diagnosed


Our members tell us that when they look back to the moment when they were first told they had Parkinson's Diesease, it was a moment they will never forget. A common reflection is that they felt alone, surrounded by a sea of questions which were not always answered straight away but rather they were left to fill in the gaps themselves over time. If you or someone you know has recently been diagnosed with Parkinson's, we hope that this website will help to answer some of your questions, and, we hope to be able to meet with you, or talk to you to answer any further questions you may have. 

 

We asked our members for some advice we could give to newly diagnosed patients, and this is what they had to say:

 

“DON'T PANIC!...It is not going to be the end of the world. Every case is different and you have to be optimistic and ready to try out any new medications or remedies that are given to you. There is much research going on to improve the condition of people suffering with PD so don't give up. DO NOT STAY AT HOME AND HIDE AWAY.......this will make you worse as you will have too much time on your hands to think and sometimes too much thinking can damage your health. Join the MPDA and see how people with PD cope and to see how PD does not stop us from leading a nearly normal life. What is a normal life anyway?”

 

“The best thing that I did when I was diagnosed was to immediately join a Parkinson Support Group. There are so many questions that need to be answered when you are first told you have it. When you meet other in the same situation, you don't feel so bad”.

 

  “Look ahead with courage and determination and naturally to join the MPDA!”

 

 “The advice I would give to someone is - Don't stay at home, try to join in and tell people you have PD, don't be ashamed, people are very understanding and helpful, try to be cheerful when with friends.”

 

“Someone who has been diagnosed with PD has to keep calm and accept the condition. It is hard, but I think that is the only way.”



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